onze laatste reis - - WaarBenJij.nu onze laatste reis - - WaarBenJij.nu
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Reisdetails van onze laatste reis

Reis:

onze laatste reis

Omschrijving:

hallo,
jammer en helaas, maar het is waar.. onze laatste gemeenschappelijke reis. Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk..
In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen..

El Jefe

Reisdoel:

Een korte vakantie

Periode:

van 21 april 2017 tot en met 29 april 2017

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Reisdetails van onze laatste reis

Reis:

onze laatste reis

Omschrijving:

hallo,
jammer en helaas, maar het is waar.. onze laatste gemeenschappelijke reis. Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk..
In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen..

El Jefe

Reisdoel:

Een korte vakantie

Periode:

van 21 april 2017 tot en met 29 april 2017

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Reisdetails van onze laatste reis

Reis:

onze laatste reis

Omschrijving:

hallo,
jammer en helaas, maar het is waar.. onze laatste gemeenschappelijke reis. Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk..
In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen..

El Jefe

Reisdoel:

Een korte vakantie

Periode:

van 21 april 2017 tot en met 29 april 2017

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Reisdetails van onze laatste reis

Reis:

onze laatste reis

Omschrijving:

hallo,
jammer en helaas, maar het is waar.. onze laatste gemeenschappelijke reis. Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk..
In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen..

El Jefe

Reisdoel:

Een korte vakantie

Periode:

van 21 april 2017 tot en met 29 april 2017

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Reisdetails van onze laatste reis

Reis:

onze laatste reis

Omschrijving:

hallo,
jammer en helaas, maar het is waar.. onze laatste gemeenschappelijke reis. Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk..
In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen..

El Jefe

Reisdoel:

Een korte vakantie

Periode:

van 21 april 2017 tot en met 29 april 2017

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Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk.. In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen.. 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    Blijf op de hoogte en volg

    onze laatste reis

    hallo,
    jammer en helaas, maar het is waar.. onze laatste gemeenschappelijke reis. Ik hoop dat jullie allen nog vele 'gemeenschappelijke' reizen zullen maken en dan nog een keer aan mij en deze reis zullen denken. Wat eraan voorafging is jullie nu wel duidelijk..
    In oktober 20216 fietsten Omi en ikke van Madrid naar Lissabon en tijdens die reis openbaarde zich voor het eerst mijn ziekte.. ik had in El Escorial voor het eerst bemerkt dat een stuk brood bleef hangen in mijn slokdarm en niet verder wilde... slechts met behulp van water en wijn ging dat stuk brood er uiteindelijk door heen. Toen ik het omi vertelde, zei ze nog 'gekscherend' "als je maar geen slokdarmkanker hebt!!". Thuisgekomen regelde ik via een bevriende collega arts een gastroscopie en dd. 28-10 bleek omi het weer eens bij het juiste eind te hebben.. Na aanvullend onderzoek, vertelde de mij behandelend MDL arts dat het hoogst waarschijnlijk niet meer te behandelen was.. er was reeds sprake van een uitzaaiing in een bepaalde klier die buiten het operatie gebied viel. Ik vlel 'buiten de richtlijn van nog curatief te behandelen slokdarmkankers'. Op aanraden van die MDL arts bezocht ik nog een super specialist op gebied van slokdarmkankers in R'dam en zeer tot mijn verrassing sprak die van een 'in opzet nog curatieve' ingreep, nl. eerst chemo/radiatie en dan, indien er dan nog geen sprake was van uitzaaiingen in lever/long, een operatie.. verwijderen van mijn 'zieke' slokdarm en het aanleggen van een 'buismaag'...!!! In december 2016/januari 2017 onderging ik eerst de chemo/radiatie, 01-02-'17 een nieuwe PET/CT scan en even later nog een gastroscopie om te zien of de slokdarm ook goed gereageerd had op de chemo/radiatie... Alles bleek in orde en de operatie werd gepland op 6 april 2017... In overleg met de chirurg werd er nog een PET/CT scan nét voor de operatie dd. 31-03 gepland... die jammer genoeg liet zien dat er toen wel sprake was van een long en lever metastase... die m.b.v. een leverpunctie 100 % 'bewezen' werd... Jammer en helaas dus, toen dus 100 % zeker niet meer 'in opzet' curatief te behandelen, alleen nog maar 'palliatief', proberen om zolang mogelijk zo goed mogelijk te 'leven'.... maar hoe ?? Eerst dus nog maar 'genieten' zolang ik dat nog zou kunnen... en dus deze reis gepland... eerst dus Napels nog een keer zien... In 2014 fietsend met Josine op onze e-bike-flyer tanden ook al een keer gezien toen er een einde kwam aan mijn huisartsen-leven... Toen waren we door omstandigheden niet in staat geweest om Pompeï en de Vesuvius te bezoeken... nu dus opnieuw daarheen..

    El Jefe

    Recente Reisverslagen:

    23 April 2017

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    21 April 2017

    voorbereiden kost tijd, niet voorbereiden méér...

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    onze laatste reis

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